Returning again to the subject of privacy – this time in the case of healthcare.
Interesting paper produced in the US by the Patient Privacy Rights group – the case for informed consent.
Paper references interesting statistics about the number of patients now demanding privacy – in fact the number of patients avoiding early medical checkups/ treatment because of concerns re privacy/ confidentiality.
The paper pushes a very valid principle – that the medial data about the patient belongs to the patient and not the hospital or clinician. Therefore it is not sufficient to think about patient privacy being addressed by software vendors.
The paper outlines it as follows: It is a mistake to design health IT in a paternalistic manner — assuming a corporation, vendor, provider or government agency knows what is best for each individual patient. Instead, we should build ‘patient-centric’ health IT systems.
The challenges posed are potentially complex – but they need to be addressed. For operators they will require changes in processes and systems. But these changes will be required to meet legal requirements and in order to establish and maintain credibility with patients.